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AMA J Ethics · 2019

Why Include the Public in Genome Editing Governance Deliberation?

AMA journal of ethics, 21(12): E1065-1070 PMID 31876471 DOI 10.1001/amajethics.2019.1065

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Аннотация

With the birth of genetically engineered twins in November 2018, international debate about human genome editing governance has moved from an emphasis on mutual engagement among multiple stakeholders to a self-regulatory model enacted through high-level expert groups with little or no public input. This article reconstructs this paradigm shift and suggests that inclusive public deliberation should still have a role in public decision making about genome editing.

Цитирование